***
This year our darling little Anna passed
from her day to day struggle with Rhett
Syndrome. My sister Hannah and I attended
the Reverse Rhett Syndrome fundraiser with our
Dear Friends and the parents of Anna, Stefanie
and Manny Gutierrez. Stefanie spoke at the
event as well. It was a very Hard and Wonderful
evening. I am in awe that Stefanie was able
to have the Strength to speak the way that she did.
***
Hannah, Steff and myself
Stephanie Speaking about moving forward
without her little girl
Hannah and I getting Ready at Steff's in Brooklyn
Broad street Ball Room
***
please check out both Videos.
one is from the evening
and the second one is a look into
Rhett Syndrome.
WE LOVE YOU ANNA!
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